Thalassemia

Thalassemia is a major health problem, placing an immeasurable emotional, psychological and economic burden on millions of people around the world.

Thalassemias are a group of genetically inherited blood disorder in which the body makes an abnormal form of hemoglobin, the protein in red blood cells that carries oxygen. It results in excessive destruction of red blood cells, which leads to anemia. Without treatment affected children have server failure to thrive and shortened life expectancy. Treatment with a regular blood transfusion, chelation therapy, bone marrow transplantation and medication aimed at reducing transfusion iron overload, allows for normal growth and development and extends life expectancy into the third to fifth decade.

These modes of treatment are very costly causing economic burden of families.

Hemophilia is a inherited genetic disorder that impairs the body’s ability to make blood clots, a process needed to stop to stop bleeding. This results in people bleeding longer after an injury, easy bruising, an increased risk of bleeding inside joints or the brain.

Treatment is by replacing the deficient blood clotting factors. This may be done on a regular basis or during bleeding episodes. To lead a normal life and to survive child needs to be given factor replacement regularly which is a burden on the family.

This has become very essential that organization engaged in providing health care to give treatment and medicines at highly subsidized costs. Keeping in view of above two diseases to reduce the burden on families affected, we formed a society “The Thalassemia and Hemophilia Society”.

Established on 04.01.2017, with 14 members headed by Dr. V.C. Charantimath. NGO, registered with Govt of Karnataka. The main aim of our society is to give free blood transfusion, free chelating drugs, free investigation and treatment for Thalassemia children and supplying and treating Hemophilia with factor transfusion at subsidized rates.

We have 134 registered Thalassemia children who are receiving free treatment since 3 month.

We are doing this through generous donations given by kind donors who are concerned with over all well being of these children. 87 donors donated so far. We thrive to give better treatment to these children for better future. We run hemato oncology clinic first Wednesday of every month at OPD no-22.